Clare Pelham, Leonard Cheshire’s CEO, doesn’t support legal action for disabled peoples’ rights

cartoon by Crippen
And when we want your opinion, we’ll tell you what it is!

Clare Pelham, Leonard Cheshire’s Chief Executive Officer, was interviewed by Peter White today on Radio 4 “You and Yours” about disabled peoples’ difficulties in accessing buses. This is because their survey of 179 wheelchair users found “over nine out of ten (92%) wheelchair users had been refused a space on a bus” and “three in five (61%) people identified buggies in the wheelchair space as the biggest problem they faced. This was way ahead of other problems faced by those using wheelchairs“.

Peter White asked her specifically if she thought that the Paulley vs Firstbus case would find in my favour at Supreme Court.

Peter White: “So this case, that is still going to the Supreme Court, are you expecting that to be restored? Mr Paulley‘s right to get on the bus?”

Clare Pelham: “I don’t think I would even presume to guess what Supreme Court judges would find. But actually, I think this shouldn’t be a case for the law. This should be a case for the people, the people to do what’s right, whether they are bus drivers or passengers, we all want to have public transport that enables all of the public to travel.”

That obviously works well, doesn’t it. People with pushchairs, other passengers, drivers, they all know and understand that if the wheelchair space isn’t made available, a wheelchair user can’t travel. Yet by her own figures, 61% of wheelchair users identify buggies in the wheelchair space as the biggest problem they face. Just how does she think the few people with pushchairs, other passengers and drivers who currently prevent wheelchair users traveling are suddenly going to realise the error of their ways? How, precisely, is she going to instill this magnanimity into the British populace? Through simpering on Radio 4?

Leonard Cheshire try to claim to be the voice of disabled people, a campaigning force to be reckoned with. That’s why they spend £735,000 per year on “campaigning”, and why they have posh offices in Vauxhaul – ostensibly so they can toddle round the corner to lobby Parliament. (They grew too big for their previous offices in Millbank.) Yet they don’t have any legitimacy. They don’t have a constituency, and politically active disabled people despise them. They also don’t walk the walk for the talk they talk, as demonstrated by Northumbria University’s research – an apposite quote below.

“One of the problems it (user involvement) causes is when residents become more empowered and aware of the opportunities of life they’re likely to ask for more. In asking for more, it usually involves staff, and resources are already very scarce and limited, and centred mainly in providing basic daily care in washing, dressing, eating and they occupy an awful lot of time. Empowerment creates problems of staff support. And if the choice of empowerment involves travel then that’s a further added burden. Not necessarily to pay the cost of travelling but to have the opportunity with limited transport or escort.” – A resident in a Leonard Cheshire care home.

Yet even Leonard Cheshire recognise that the Firstbus case is an important fight. Andy Cole (Minister for Administrative Aff – sorry, Director of Corporate Affairs) told BBC News that Leonard Cheshire was disappointed with the Appeal Court judgement as it did not provide “clarity and certainty for disabled bus passengers that the space they need will definitely be made available“, and further that if the case moved to the Supreme Court he hoped any judgement would provide that certainty. (He even gave me a back-handed compliment; “The case shows the immense impact that individual campaigners can have“).

One wonders what planet Clare Pelham is on. Out of touch with service users, disabled people, her own care-workers and even her own campaign team (or at least her Ashley Maddison rep – sorry, “Director of Corporate Affairs”.)

Non-disabled and on £150,000 per year plus private medical treatment and other benefits – surely Clare Pelham should shut up or carry on her disempowering self-serving greasy-pole-climbing elsewhere?

With thanks as ever to the wonderful Dave Lupton / Crippen for his excellent cartoon.

“Wheelchair accessible” National Express coaches

There’s a coach service that stops in Wetherby, my home town, once a day in each direction, to Newcastle upon Tyne via Durham and southbound to Nottingham via Leeds and Sheffield. I thought I’d try it out, because National Express now claim that “virtually all of our fleet now has a passenger lift at the front entrance to make travelling with us as accessible as possible.” But I note that “We must therefore assess all wheelchairs to see if they are compatible for carriage on the coach itself. You can do this by calling our dedicated Assisted Travel Team before you travel.” I therefore rang them to ask if my wheelchair and the Wetherby stop is OK. They said they would get back to me and didn’t. What followed was Kafkaesque.

Me, 28th April: Please can you tell me if I can travel in my wheelchair, it’s a manual wheelchair, a RGK Maxima. Please can you tell me if Wetherby coach stop is accessible for your coaches?

NX, 29th April: I can confirm that your wheelchair has been safety checked with our services so that is fine. Wetherby is a stop that we would need to assess to see if it is accessible.

Me, 29th April: Please can you assess Wetherby stop

NX, 30th April: Your request has been sent off to the relevant department to assess.Please can you check with us once you have decided upon a date of travel so that we can check to see if the assessment has been done. I hope this helps.

WTF?! They asked me for a travel date for the stop I didn’t know whether I could use. How does that work?

Me, 30th April:No, please can you let me know when it’s been done, and how long it will take, rather than asking me to contact you on some nebulous future date?

Me, 8th May: So have you had a look at this stop yet?

NX, 8th May: The stop check has been requested however has yet to be scheduled in.The stop will be scheduled in and checked when our Safety team are within that region. Each member of the Safety team are in charge of one region each and while this is the case, due to the region being quite large, it may take some time for this stop to be checked. I thank you for your patience in the meantime.

Me, 21st May: Please can you tell me if you have assessed the Wetherby bus stop, and if not, when you will be able to do so

Me, 31st July: Have you checked the Wetherby bus stop yet?

NX, 6th August: I am sorry for the delay. I have spoken to the department that checks stops and they have advised that they aim to have the check done by the end of this month. Thank you for your patience in the meantime.

NX, 17th November: I am really sorry for the delay in our response.The Wetherby stop has been checked and I am sorry to inform the verdict has come back as the stop being inaccessible. The space in use is not flat and does not have sufficient amount of space for it to be deployed.I hope this information helps, thank you for your patience whilst this was looked into.

Yeah that helped loads, thank you National Express, and 6½ months is a perfectly reasonable time to tell me that the stop I use for local buses without problem is not accessible to your “accessible” coaches. Just like non-disabled people – oh sorry, wait, they can book a day ahead and rely on being able to travel, or even Turn Up And Go.

For Goodness’ sake.

Equality Act Disability Select Committee evidence

Well, that was a nervy and interesting experience. I am very grateful to the Lords Select Committee on the Equality Act 2010 and Disability for giving me the opportunity to give evidence today, along with Mr Jonathan Fogerty and (later) Mr Paul Breckell. I’m also grateful for the support of Gwynneth Peddler and Lianna Etkind from that wonderful group of disability transport activists Transport for All, and to my wonderful, committed and hard-working PA Mike.

Here’s a transcript of my oral evidence – or there’s the video of the recording below..

My written evidence to the Committee is already online.